In today's episode, I spoke with 1 of the profession's leading scholars as well as experts on perinatal loss, associate professor of social operate at Virginia Commonwealth University, Dr. Sarah Kye Price.
We talked why it is of import to do a thorough assessment of pregnancy as well as pregnancy-related loss during a biopsychosocialspiritual assessment. She talked nigh the importance of allowing mothers / parents to tell their story. She pointed out that, although no loss is worse than whatever other, at that topographic point are different intensities as well as needs depending on the loss. She also noted that families inwards which at that topographic point was a perinatal loss, at that topographic point tin also live growth. We talked nigh the different types of interventions as well as handling approaches for individuals as well as families who experience perinatal loss. We ended our conversation with resources for people interested inwards learning more.
Bio
Sarah Kye Price is an Associate Professor inwards the School of Social Work at Virginia Commonwealth University. She received her PhD from Washington University inwards St. Louis as well as her MSW from Syracuse University. She currently teaches courses inwards direct social operate practise as well as crisis intervention/planned short-term handling inwards the MSW program, equally good equally enquiry methods as well as programme evaluation inwards the Doctoral program. Her prior direct practise experiences include operate equally a Grief Therapist for Life Transitions Center inwards Buffalo, NY as well as the coordinator of SIDS household unit of measurement back upwardly services inwards both Western New York as well as the St. Louis, Missouri tube region. Her enquiry as well as publications focus on the socio-cultural as well as psychosocial experiences of reproductive as well as perinatal loss, equally good equally women’s mental wellness within low-income communities disproportionately affected past times fetal as well as infant mortality. She is currently funded through the National Institutes for Health via the VCU Center for Clinical as well as Translational Research KL2 Scholar program, working inwards partnership with maternal as well as kid wellness habitation visiting programs inwards Virginia to implement as well as evaluate the Enhanced Engagement model of MCH habitation visiting which integrates mental wellness services, including bereavement support, into existing wellness advertisement programs for pregnant as well as parenting women inwards low-income communities. Her vision is create a responsive tier of services that integrates bereavement back upwardly as well as mental wellness advertisement fluidly…and without stigma…into existing services supporting pregnant as well as postpartum women. Dr. Price is the Past President of the Pregnancy Loss as well as Infant Death Alliance (PLIDA), a national non-profit arrangement whose mission is to back upwardly the operate of professionals who back upwardly grieving families.
Contact
Phone: (804) 828-0579Email: skprice@vcu.edu
Transcript
Introduction
[00:00:13]
Jonathan Singer: Hey at that topographic point podcast listeners. The lastly few times I've come upwardly to tape introductions for the Social Work Podcast, at that topographic point had been major populace tragedies inwards the US involving the rattling painful loss of life. H5N1 twosome of episodes ago, at that topographic point was the massacre at Sandy Hook Elementary School. Earlier this week, at that topographic point was the bombing at the Boston Marathon as well as only lastly black at that topographic point was an explosion at a flora inwards West Texas. The decease toll as well as the injury toll from that lawsuit is notwithstanding unknown. These types of losses are rattling visible as well as rattling public.
Today’s episode is on a to a greater extent than invisible, invisible to professionals as well as invisible to the public, rattling private variety of loss. It's on perinatal loss. And perinatal loss is ectopic pregnancies, miscarriages (which are officially known equally spontaneous abortions), stillbirths (or belatedly term pregnancy loss), as well as thence neonatal or newborn death.
Between a quarter as well as 50% of all people take away hold experienced some sort of pregnancy-related loss as well as yet it's something that nosotros rarely utter about. And that’s 1 of the reasons why I was thence excited to utter with today’s guest: 1 of social work’s leading scholars as well as experts inwards perinatal loss, associate professor of social operate at Virginia Commonwealth University, Sarah Kye Price.
In today’s interview, Sarah as well as I utter nigh the importance of exploring pregnancy-related loss inwards the biopsychosocial spiritual assessment. Sarah clarified that although at that topographic point are different types of pregnancy loss, no loss is worse than whatever other variety of loss, fifty-fifty if they vary inwards intensity as well as demand depending on the type of loss. We talked nigh the kinds of services that are available as well as what social workers tin do. She also talked nigh the importance of allowing parents to tell their stories as well as increment that tin follow loss. And nosotros ended with a conversation nigh resources for folks who are interested inwards learning more.
I recorded my conversation with Sarah inwards Nov of 2012. We were at a conference. In the starting fourth dimension you'll hear sirens; at that topographic point are sounds of vacuums as well as air conditioners going on as well as off. It's non thence much that it's distracting, but surely with the sirens I want to allow y'all know inwards instance you're listening to this inwards the motorcar or anywhere where the sound of sirens mightiness live disconcerting.
So that beingness said, on to episode 79 of the Social Work Podcast: “Perinatal Loss: An Interview with Sarah Kye Price.”
[00:03:07]
Interview
Jonathan Singer: So Sarah, thank y'all thence much for beingness with us hither today on the Social Work Podcast as well as talking nigh perinatal loss. So, the initiative off inquiry is: What is perinatal loss?
[00:03:17]
Sarah Kye Price: Well, give thank y'all you for having me as well as give thank y'all you for wanting to utter nigh the topic. I think 1 of the misconceptions that people take away hold is that perinatal loss mightiness live a niche surface area of social operate or something that is a rattling fine surface area of the acre as well as inwards reality, nigh 25% to upwards on 50% of women inwards families experience some sort of a decease or reproductive loss event. And when I usage the term perinatal loss, I'm referring to a decease that happens either when the fetus is developing during pregnancy- or during that time- during childbirth or similar a shot after childbirth inwards the childbirth as well as neonatal period.
Jonathan Singer: Clearly if 50% of families take away hold experienced that, that’s important. What made y'all interested inwards this?
[00:04:08]
Sarah Kye Price: Well, I started out equally a geriatric social worker. So I didn’t start out equally a social worker who said: “I want to operate with perinatal loss.” But I started out equally someone who worked with older adults at the cease of their lifespan. And 1 of the things that happened to me is inwards the course of instruction of nigh a year, I had 4 older adult women with rattling complicated loss issues. And heed you, bereavement has ever been my passion inwards the acre as well as thence I was working with older adults because that’s I guess what nosotros traditionally think: cease of life, there's to a greater extent than issues of loss equally nosotros age.
But for the women that I worked with, as well as 1 stands out inwards particular, I was working on a hospice squad equally a bereavement coordinator as well as at that topographic point was a household unit of measurement who was a rattling typical hospice family, rattling supportive involved family. There wasn’t a lot of [00:05:00] perceived crisis. We were going to supply full general back upwardly equally nosotros ever did. But the solar daytime after, the human being who was enrolled inwards hospice passed away, the nurse called me inwards the squad as well as said: “You take away hold to go out as well as catch – (I'll telephone telephone her Betty) as well as I'm worried nigh her. I'm terrified. She’s non right. Something is non correct as well as I don’t know what's going on.”
So that was my job, thence I went out to utter with her as well as equally I ofttimes did with my older adult clients. And she was, she was rattling much inwards needlelike distress, to a greater extent than thence than would live predicted given all the anticipatory loss that the squad had seen as well as thence I said, “Betty, are at that topographic point other times inwards your life when you’ve experienced a loss as well as what were some of things that y'all did to assist y'all through those times?”
And she broke downwardly inwards tears as well as began to tell me this story nigh the kid that she had, that she had given nativity to. And she had a rattling hard pregnancy as well as the kid had some rattling important malformations at nativity as well as at the fourth dimension she wasn’t allowed to see, concur or fifty-fifty admit the kid that she had given nativity to. She was inwards essence, y'all know, anesthetized for delivery. Her hubby was – went with the doctors, had the baby’s torso disposed of as well as told her afterwards it was amend that y'all didn’t catch the child.
The ii of them are the alone people that knew nigh the existence of this picayune life that she had given nativity to as well as had lived alone a few minutes actually, after the babe had been born. And she held that with her husband their entire marriage, which was 64 years as well as after he died, she went into an needlelike distress over this particular loss equally if it had happened that minute. And I thought to myself: We take away hold to do better. We MUST do amend for women as well as families.
People demand to non experience this needlelike hurting throughout their lifespan as well as to take away hold that loss hap later. We can't ever command when a loss lawsuit happens, but nosotros tin command the way the scheme as well as individuals inwards company responds to that loss event.
So I think that was the turning bespeak inwards my career. I had some similar situations with older adults who were genuinely acutely notwithstanding grieving losses that had happened during pregnancy, unresolved grief that had happened inwards their lifetime. But it made me realize nosotros needed to do something different. And I began to sort of brand connections inwards the community as well as specialize with groups who mightiness interface with women as well as families who had experienced perinatal loss or early on infant deaths to attempt to catch what was happening inwards the healthcare provider community as well as to catch the ways that nosotros could respond differently to families.
Jonathan Singer: It's such a deplorable story to think about, y'all know, that this adult woman had – initiative off of all- the lawsuit was deplorable clearly, but that this adult woman had to alive with this with her hubby sort of inwards isolation. And that fifty-fifty though they were involved inwards this sort of scheme of care, correct hospice, it wasn’t something that it sounded similar anybody ever knew about.
Sarah Kye Price: Exactly as well as I think 1 of the things that happens is that nosotros take away hold a lot of socially recognized losses, which are expected losses. And it's hard when nosotros take away hold whatever variety of losses, whether it's of a parent, of a spouse, but at that topographic point are sort of socially sanctioned losses that nosotros await nosotros mightiness take away hold to encounter inwards this lifetime as well as at that topographic point are social rituals around that. There's funerals as well as wakes as well as periods of mourning as well as unfortunately, when a decease happens during pregnancy or before long after birth, at that topographic point aren't the same rituals that environs that. And sometimes I think there's a few social taboos that acquire inwards the way.
What was interesting, as well as it was a particular story that I talked about, is that nosotros ended upwardly doing grief work, non nigh her spouse- until later. We genuinely did grief operate around the immediacy of the loss that she felt as well as genuinely did a rattling uncomplicated remembrance as well as naming ceremony as well as gave some acceptance to that loss that she had held for thence many years equally real. And I think that that is a theme that I've genuinely had to reencounter with a number of families, is the realness of a loss fifty-fifty if nosotros can't see, we're experiencing. You know, at nine months of pregnancy are an experience of the presence as well as expectation. So whether or non nosotros take away hold a worldview that thinks that life begins at innovation as well as nosotros appear at this equally personhood or nosotros take away hold a worldview that says that that life begins when the initiative off breath is taken, that’s irrelevant.
We come across our clients where we're at as well as what nosotros do is nosotros operate with them around the [00:10:00] expectations as well as the normal attachments that nosotros want, of course, to develop inwards a salubrious pregnancy. And when those ties are severed because of decease as well as loss, nosotros want to come across that customer where they're at inwards monastic enjoin to back upwardly them inwards grieving that loss.
Jonathan Singer: Earlier y'all mentioned that, y'all know, peradventure upwardly to 50% of families that nosotros operate with take away hold experienced a perinatal loss as well as that loss could occur inwards the initiative off trimester.
[00:10:27]
Sarah Kye Price: Yes. And that’s the argue for the high-end number. I did some operate with information from the National Center for Education Statistics inwards a national survey of fertility barriers, ii different large national studies, as well as both of that information would presume that nigh 25% of all currently parenting families inwards the US take away hold experienced a decease during pregnancy that was recorded on a nativity certificate.
Now that presumes that someone has sought aid inwards a wellness scheme as well as things are recorded inwards a nativity certificate, thence that tends to reverberate to a greater extent than after gestational losses. The estimates from a number of different studies are that over the course of instruction of one’s lifetime, y'all take away hold many to a greater extent than opportunities to take away hold an experience of loss. And thence that if nosotros appear at people inwards terms of lifetime risk, unopen to 50% of all people experience the possibility that they’ll take away hold a loss lawsuit happen. Whether that is an early on miscarriage, nosotros variety of coined some terms to brand miscarriage- is non a medical term really, I hateful we've variety of coined it equally a social term or stillbirth.
Jonathan Singer: I think the medical term is “fetal demise.”
Sarah Kye Price: Fetal demise, correct which means: “that whatever fourth dimension at which the fetus is non feasible plenty to hold upwardly on its ain if it were to live born.” So that’s what nosotros genuinely do as well as it's a rattling large span. And I think over time, of course, because medical applied scientific discipline becomes to a greater extent than advanced, nosotros take away hold the possibility of doing to a greater extent than medical heroics, thence at that topographic point are babies at younger gestational ages that do hold upwardly with medical intervention.
So, I think those definitions take away hold shifted only equally applied scientific discipline advances. And it's interesting, I haven’t done enquiry specifically on the subject, but a lot of us who take away hold done anecdotal operate with families, at that topographic point are some different expectations around survival at sure ages as well as what nosotros think of inwards terms of viability. And I think that I'm non making a judgment telephone telephone on what that is, but I think it becomes to a greater extent than of a reality of what inwards clinical practise nosotros take away hold to live willing to converse nigh as well as concur with families. Are at that topographic point expectations around viability as well as survivability? Because that’s genuinely changed equally applied scientific discipline has changed.
Jonathan Singer: Yeah, when y'all tin take away hold a delivery at 22 weeks, 24 weeks as well as that baby, y'all know, vi years after is a happy picayune kid running around that, y'all know, twenty or xxx years agone would never take away hold lived to live 6.
Sarah Kye Price: Right.
Jonathan Singer: -Would never take away hold lived.
Sarah Kye Price: Exactly. And y'all know on 1 side it's wonderful, but non every unmarried fetus at 22 weeks is going to live able to take away hold that success story as well as that’s non a thing of something y'all or I could control. I hateful it's wonderful that nosotros release that chance for it to happen, but at that topographic point are equally many people who unfortunately, y'all know, take away hold a belief that maybe this volition hap as well as the number isn't only positive for them. And thence I think that becomes component division of the story.
One of the things that I found inwards my ain practise is that people demand to tell their story. Not because they're looking to y'all to give them the perfect answer, but because they demand to utter through the story of expectation, of hope, of sadness as well as it has a different characteristic for everyone. The details, at that topographic point are sure details for sure families that volition stand upwardly out, that they genuinely demand to process, as well as unfortunately nosotros don’t socially take away hold a genuinely goodness way of allowing for that story to live told.
Jonathan Singer: And y'all can't opened upwardly up the infinite for somebody to utter nigh that story if y'all don’t know that that is component division of their story.
Sarah Kye Price: Exactly. And y'all know, it's go genuinely rattling evident to me how much nosotros overlook people’s stories when it comes to reproductive as well as perinatal loss.
Even when I was on the task marketplace (the academic task market) as well as my dissertation was on pregnancy after perinatal loss as well as thence I would give my task utter inwards a rattling academic setting, y'all know, thence the audience weren't people who are at that topographic point to hear me utter nigh perinatal bereavement. Every fourth dimension I gave a talk, [00:15:00] someone came upwardly to me as well as said: “Thank you. This happened to me. This happened to my sister. I didn’t know what to say.”
People constantly come upwardly up to me, fifty-fifty when I'm non inwards a crowd where I would await them to, as well as tell me their stories. And that reinforces to me that piece nosotros take away hold made a lot of gains inwards the lastly 10 years, peculiarly inwards the healthcare provider community inwards trying to respond to families’ needs around perinatal loss, nosotros notwithstanding take away hold a lot of people whose stories aren't beingness told as well as non all those people demand therapy.
There's a difference, y'all know, sometimes people do as well as there's a usage for grief counseling as well as grief therapy inwards working with some of the issues that are non equally slow to resolve. But nosotros all do demand an chance to tell our story as well as live heard as well as displace through a pregnant making process. That is what grief is nigh as well as only the acknowledgment that it's okay to engage inwards that pregnant making procedure around the loss that’s sometimes socially invisible is a genuinely powerful, powerful statement.
Jonathan Singer: And y'all know, 1 of the things that’s clear from what you’ve said thence far is that, y'all know, a perinatal loss is something that tin alive within somebody’s, y'all know, psyche, mind, heart. But because there's no sort of socially sanctioned way to acquire it out at that topographic point (unlike the decease of a spouse) that unless nosotros inquire nigh that inwards an intake assessment, correct or something – y'all know, when we're doing our biopsychosocial, y'all know, maybe this is a picayune also harsh, but y'all know we're sort of contributing to that civilization of quiet around it. And so, y'all know, for folks doing biopsychosocials, doing an intake assessment, what sort of things should nosotros live bespeak thence that we're doing a amend task of establishing this number of perinatal loss or issues around pregnancy that are of import inwards our client’s lives as well as our client’s parents’ lives that mightiness take away hold affected the household unit of measurement that nosotros mightiness otherwise non know about?
[00:17:17]
Sarah Kye Price: That’s a non bad inquiry as well as thank y'all for bespeak nigh that. The articles that I wrote for social operate a few years agone give some rattling specific guidelines for social workers inwards assessment because you're right, at that topographic point is a silence. And it's non that we're intending to create it, but sometimes we're afraid to ask. We don’t know how to inquire this question. So, I similar to think that at that topographic point – 1 of the subjects nosotros belike utter nigh the to the lowest degree inwards social operate is reproduction, but it affects our whole biopsychosocial, right.
I hateful there's zip nigh pregnancy as well as childbirth that isn't bio as well as psycho as well as social. You know, it's thence intrinsic to what nosotros do as well as yet our profession hasn’t genuinely embraced that whole similar pregnancy utter inwards the same way that nosotros would. Maybe nosotros catch it equally an obstetrics thing or–
Jonathan Singer: Yeah. We're non midwives or OB-GYN, thence that’s non us, right.
Sarah Kye Price: Right, right, but at the same fourth dimension I think bespeak – thence I would encourage social workers to utter nigh pregnancy as well as reproductive history inwards general, which thence offers y'all a perfect foray to inquire a after question. Because I think nosotros take away hold neglected all of pregnancy history, oftentimes unless we're working inwards genuinely specialized settings, but I think–
Jonathan Singer: Yeah, or it's rattling perfunctory as well as sort of like–
Sarah Kye Price: Yes.
Jonathan Singer: “So, how was your pregnancy with your kid? Were y'all taking vitamins or anything else? Okay, good.”
Sarah Kye Price: Okay, yeah, yeah. “Now displace on…
Jonathan Singer: “Now, let's displace on with developmental milestones, y'all know.”
Sarah Kye Price: Exactly. I'm only saying, y'all know, when nosotros utter nigh child, when nosotros utter nigh reproduction, y'all know, bespeak an open-ended inquiry as well as saying: “Can y'all tell me a picayune scrap nigh your experiences inwards thinking nigh having children as well as pregnancies that y'all may take away hold had as well as genuinely having children as well as what that’s been similar for you?” We tin inquire a rattling opened upwardly assessment inquiry similar that, which doesn’t experience threatening for me to inquire or for y'all to hear. And I think, y'all know, I would encourage us to inquire this of men as well as women because men also take away hold a reproductive history. So this is non only a woman’s issue.
I think for women there's an extra nuance (and I want to genuinely emphasize this for social workers) is that there's a bio inwards that biopsychosocial as well as thence for whatever adult woman who has been pregnant for whatever length of time, this pregnancy is attached to her body. You know, there's no separation betwixt the developing fetus as well as the torso inwards which that developing fetus is housed-in. So, I'm peculiarly interested inwards women’s experiences of perinatal loss (not to the exclusion of men) as well as it's ever inwards a familial [00:20:00] context, but I think maybe nosotros haven’t done equally much thought operate around that connection.
And some writers as well as people who take away hold written inwards this surface area that I genuinely respect, Linda Layne is 1 of them as well as she’s a feminist medical anthropologist actually, but she’s written a lot nigh how fifty-fifty our terminology connects losses to torso losses or terms similar incompetent neck or that create the possibility for pre-term labor. You know fifty-fifty inwards our medical terminology, nosotros take away hold connected it to torso failure as well as thence many of the women that I've seen inwards my practise are saying: “What's incorrect with me. I had this loss, there’s something incorrect with me.”
And it's non ever what's incorrect with me, there's a number of different circumstances that tin happen. But thinking nigh that biopsychosocial connexion of loss, it's a bio loss as well as for women who take away hold been pregnant thence that they're lactating or they take away hold hormonal fluctuations inwards pregnancy (similar to the way nosotros all do postpartum after delivery) y'all know, there's postpartum hormonal fluctuations if a babe dies equally much equally at that topographic point are if a babe lives as well as nosotros don’t ever seat that bio together. And thence whether we're working inwards a wellness system, whether we're working inwards kid welfare, whether we're working inwards a full general mental wellness setting, having the chance for people to utter nigh their pregnancy history as well as thence depending on what they say, only finding those moments (as nosotros all know hap inwards a worker-client encounter) to say: “Are at that topographic point whatever – take away hold at that topographic point been whatever times when pregnancies haven’t gone equally y'all expected? Had at that topographic point been anything that felt similar a loss to you?”
And interestingly, I mean, for many families (we haven’t talked nigh this yet), but the notion of infertility or the want to take away hold a kid as well as non beingness able to fulfill that, that’s a different variety of reproductive loss as well as it's notwithstanding at that topographic point as well as introduce too. So I think it allows us, it sends a message to our clients that we're opened upwardly to hearing their stories as well as struggles equally good equally their successes as well as joys. Pregnancy is an interesting fourth dimension period, y'all know, as well as reproduction is filled with joy as well as it's also filled with the potential for some loss as well as if nosotros acquire comfortable with that thence nosotros tin inquire the inquiry as well as nosotros tin hear the stories.
Jonathan Singer: And thence 1 of the questions that I had was: In your enquiry or inwards the enquiry that other folks take away hold done, is at that topographic point whatever indication that some loss is worse than others? Like equally social workers tin nosotros say: “Okay, thence y'all know initiative off trimester miscarriage, non thence bad. But this other thing, genuinely bad.” Like tin nosotros gauge it that way or not?
[00:22:52]
Sarah Kye Price: Well, I would say that, I hateful I was at a workshop that Ken Doka, who is a grief writer, gave a number of years ago. It was a full general loss workshop (but it pertains to your question) as well as he had a flip nautical chart upwardly on the board (because there's a whole bunch of bereavement professionals) as well as he said, “All right, all right, y'all know. We know there's no loss that’s worse than others. But y'all know really, we're the grief professionals. I want to hear it. Put it upwardly on the board. What’s the hardest things for people to operate with?”
And thence people had said, y'all know, diverse things that they’d encountered inwards their practise that were rattling hard as well as they struggled. And he said: “There's alone 1 reply to this question.” And he flipped his flip nautical chart over as well as it said: “Your loss.” [Pause] That stuck inwards my heed deeply. Because it is the experience of your ain loss that is the most hard to bargain with because every loss is thence total of nuance.
One of the hardest things for me to residuum equally a researcher, inwards this area, is the fact that bereavement as well as loss are thence nuanced. And yet nosotros do also demand a sense of normativeness because it helps us prepare; it helps us develop an evidence base of operations for practice. So what I would say to that inquiry is that the intensity of the loss of these different types of perinatal losses, the intensity as well as the needs are different with different types of losses, but there's none that’s worse than the other except the 1 of the customer that you're working with as well as that’s where the focus remains. It's non whose loss is greater or less.
But the families nosotros operate with combat with this equally well, because sometimes I volition invite someone to a back upwardly grouping that’s to a greater extent than of a “general loss group” as well as people take away hold gotten the feeling that their losses are sort of relegated. And that’s rattling existent as well as it's non an intentionality of other people inwards the group.
I've facilitated groups where I've heard, y'all know, equally the words are coming out of my client’s mouth, I want to pick it upwardly as well as accept it away. But I can't because that’s inwards the grouping where we've been sharing this as well as someone says: “Well, at to the lowest degree y'all got to catch your baby.” Or y'all know people volition say things because it's based on their ain experience. [00:25:00] There's hurting that’s rattling specific to non beingness able to catch as well as concur as well as aid for a babe because a loss happens early. There's hurting that’s unique when a loss has happened as well as it's known nigh as well as the pregnancy is carried to term. And there's anticipatory loss as well as fifty-fifty if it's with a lot of support, that’s painful. There's loss when everything is going perfectly as well as thence something tragic happens during the nativity procedure as well as a decease happens that’s rattling unexpected.
There is hurting when someone has had years as well as years as well as years of infertility as well as finally gets pregnant as well as has a loss at viii weeks that most people would say: “Oh, it's only an eight-week loss.” But that household unit of measurement is wrestling because it was their initiative off hopeful experience when they had had such difficulty with conception. So, I tin never say that there's 1 of those losses that is to a greater extent than important than another, but I tin say that it's of import to allow for the nuance as well as that’s where the meaning-making comes in, to allow our clients to utter nigh the pregnant that they make.
We've also talked to this bespeak nigh loss inwards terms of the painful deplorable elements of loss-which are absolutely real. But there's also a lot of literature emerging around the personal increment domains of loss as well as there's a few people as well as genuinely an analysis that I only did that reinforce the way inwards which peculiarly perinatal loss, reproductive loss experiences. So I looked inwards this recent study that only came out inwards Illness, Crisis as well as Loss, I looked at a segment of families who had experience inwards fertility as well as a segment of families who experience perinatal loss as well as a non-bereaved segment of families off inwards the national survey of fertility barriers as well as nosotros saw some similarities inwards – I was working with confirmatory factor analysis.
We saw some similarities with depression as well as with complicated grief symptomatology inwards families who had experienced the perinatal decease as well as infertility. But what was interesting is that nosotros saw commonalities also for those ii groups over a non-bereaved grouping inwards terms of personal growth.
Jonathan Singer: So you're maxim that the folks that experienced the loss had sort of a grade of increment that the folks that didn’t experience the loss didn’t–
Sarah Kye Price: Didn’t have.
Jonathan Singer: – have.
Sarah Kye Price: And thence their full general senses of life satisfaction, of things beingness okay, of having the correct perspective nigh life, some of these personal increment questions that nosotros were able to extract from the survey were distinctly different as well as stronger inwards families that take away hold had experienced loss, whether it was infertility-related loss or a perinatal death-related loss. And this made me – the findings were, y'all know, rattling – only thence compelling to me when I did the analysis.
I had sort of asked it equally an exploratory hypothesis to attempt to figure out from some of what nosotros were writing conceptually nigh personal increment equally a conceptual domain, whether that would concur truthful inwards actual data. But what was thence compelling to me were some of the stories I would go dorsum to the families that I worked with inwards practise because many of the women as well as men that I worked with inwards practise are immature as well as for many of them this was 1 of their initiative off major encounters with death. Because y'all tend to live younger inwards your reproductive years, non to say that all of us are immune from other losses inwards our life, but this was a – this is a biggie.
This is a large hard loss as well as when it happens as well as y'all don’t take away hold other loss-related coping mechanisms, it throws you—psychologically. But the processes that are inwards house through support, through talking, through the story sharing, through figuring out what they were made of, through figuring out what their relationships were made of as well as how to communicate around these emotive issues, they would study increasing amounts of personal increment inwards a sort of simultaneous way.
You know there's increment as well as there's challenge at the same time. And I think that that is something that nosotros take away hold to genuinely accept into occupation concern human relationship inwards strength-based practise equally well, that we're non only sort of patting someone on the arm as well as letting them yell as well as telling them it volition acquire better. But that nosotros are actively working with someone to say: “This is painful as well as what are y'all learning. This is painful, how are y'all communicating with your partner? This, y'all know, this may live difficult, what are y'all learning nigh yourself? How has your perspective of life changed?” So that we're both facilitating increment equally good equally facilitating motion through the to a greater extent than hard as well as challenging sadness as well as guilt as well as anger as well as confusion that hap with a loss experience equally well.
Jonathan Singer: So, equally we've talked nigh [00:30:00] the thought of initiative off of all, finding out that there's a loss, right, which is the initiative off measuring as well as beingness able to address it. And thence acknowledging that loss happens non only for the adult woman but also for the man, right, as well as peradventure for other people inwards the family.
Sarah Kye Price: Exactly.
Jonathan Singer: That there's this biological element that is specific to the adult woman as well as that at that topographic point are fifty-fifty opportunities for growth. How do y'all operate with somebody for whom this is, either: presents with this equally a primary concern. Like, y'all know: “We had – nosotros experienced perinatal loss vi months ago. I'm completely nether water, similar I demand help.” Like that’s presenting or somebody that during an assessment it comes upwardly that this has been component division of what appears to live variety of an ongoing thing but isn't just why they came inwards in the initiative off place.
Like do y'all operate with those folks differently? And if so, what would a social worker do with somebody who’s experiencing perinatal loss? Do y'all supply the therapy? Do y'all refer them out to somebody else, private group, what do y'all do with these folks?
[00:31:20]
Sarah Kye Price: It's a non bad inquiry as well as y'all know equally I said, I started my career inwards geriatrics as well as thence I personally take away hold worked with clients around perinatal loss issues as well as long-term care, habitation wellness care, hospice care, direct bereavement counseling as well as at nowadays I do maternal as well as kid wellness work. And thence I do a lot of operate with community-based organizations, similar maternal as well as kid wellness habitation visiting, early on caput start who are encountering, y'all know, these existent issues inwards the lives of women.
So, y'all take away hold ii genuinely of import questions as well as 1 is when someone says: “You know, I've had this loss, I don’t know what to do with this” as well as I think nigh a customer who did come upwardly inwards on referrals of course of instruction ended with my desk because y'all know the alone 1 I did.
Jonathan Singer as well as Sarah Kye Price: Give it to Sarah!
Sarah Kye Price: But I recall I didn’t take away hold that many clients, fifty-fifty though I was known to live a specialist inwards this area, who volition come upwardly to catch me only around a perinatal loss. But when I did take away hold some clients who did, it was rattling ofttimes because they wanted to know if it was okay for them to grieve this as well as the most powerful thing I gave them was validation.
So some of the uncomplicated questions that I do when someone comes in: “So what take away hold y'all done correct now? You’ve had this loss. It's been rattling difficult. It's been rattling challenging. Has at that topographic point been anything that you’ve been able to do that feels similar allowed y'all to commemorate or recall or pay tribute to this experience inwards your life?” Whether or non that way an experience as well as they want to take away hold a naming ceremony as well as they want an experience that’s to a greater extent than typical for a funeral that we’d live familiar with for a somebody that died inwards some other relationship. Or whether it has to do with an experience, an aspect of how this beingness pregnant, this loss during pregnancy, this loss of expectation impacted you.
And thence I similar to utter nigh both of those equally happening simultaneously with reproductive loss because I can't presume where someone’s thoughts are as well as interestingly, at that topographic point are a number of different ways to go inwards either direction. There are ways to facilitate, y'all know, gathering as well as helping them programme something that’s, y'all know, a rattling uncomplicated memorial.
There's also, inwards 1 of the websites that I'll give to you, there's an arrangement called “The Secret Club Project” that’s only completely arts-based. It's families, people from families who’ve experienced a perinatal loss, who’ve expressed it through art. And sometimes people notice non bad comfort inwards seeing the way people take away hold given artistic aspect to their experience of loss equally good as well as that may live something that they tin do, thence it's sort of allowing that opened upwardly expression.
What is going to live meaningful to you, is the question. What volition live a meaningful way for y'all to recognize this experience equally component division of your life history, because that’s genuinely what I encourage us to do equally social workers. We don’t take away hold to live funeral planners or-- what nosotros take away hold to do is give people an chance to integrate the events of their life into their history as well as story of who they are.
That’s what our biopsychosocial approach is nigh as well as thence opening that upwardly as well as letting them explore is what I would encourage. It tin live rattling helpful to many families to utter with other families who take away hold experienced the loss, whether that’s through a grouping setting or whether that’s exploring with them what organizations they're already a component division of, civic organizations, religious faith-based organizations as well as saying: “Is at that topographic point a way for y'all to [00:35:00] utter with people nigh your experience there?” as well as catch if there's anyone y'all already know who’s experienced a similar loss, because there's zip similar opening that door to realize that y'all are non equally lonely equally y'all think y'all are.
Jonathan Singer: Right. And from the stats that y'all talked nigh inwards the starting fourth dimension of this interview, it's almost definite that at that topographic point volition live somebody–
Sarah Kye Price: Right.
Jonathan Singer: – who they don’t know–
Sarah Kye Price: Yeah.
Jonathan Singer: – but that has experienced a perinatal loss.
Sarah Kye Price: Because there's a lot of quiet that moves around that as well as sometimes only knowing that there's someone that they tin connect with. It doesn’t hateful they take away hold to take away hold a weekly meeting, or some people want that, that’s grand. But at that topographic point are other people who only knowing that there's someone else, only non living within their ain caput or feeling similar they're isolated inwards the experience is genuinely significant.
Jonathan Singer: Right. Is there, y'all know inwards social operate nosotros talked a lot nigh sort of empirically-supported treatments or best practices, are at that topographic point best practices for working with either individuals or couples or fifty-fifty families who’ve experienced a perinatal loss?
[00:36:06]
Sarah Kye Price: Yeah. Well, y'all know where I plow to a lot, there's ii organizations that genuinely take away hold done a lot of work, interdisciplinary operate with nurses, social workers, chaplains, people who tend to live inwards the front end describe of contact with people when a loss happens. And there's an arrangement called “Bereavement Services,” used to live called “Resolved Through Sharing,” that’s based out of Wisconsin as well as they offering professional person preparation nationwide as well as “Train the Trainer” training.
What they genuinely emphasize are relationship-based model of aid that genuinely resonates rattling good with our social operate values, fifty-fifty though it came out of to a greater extent than ofttimes than non nursing practice. It genuinely resonates with that strength perspective as well as helps genuinely anyone inwards the helping capacity, sympathize the key alternative making as well as allowing, facilitating alternative fifty-fifty when choices are limited inwards someone’s life.
And thence there's “Share Pregnancy” as well as “Infant Death Support” which is located inwards St. Charles, Missouri equally their headquarters, but they are also national organization. And they offering many trainings for back upwardly grouping facilitators, equally good equally online back upwardly as well as thence they take away hold a moderated, facilitated online back upwardly network for families who’ve experience perinatal loss equally well.
So, there's several different organizations that do that, I think, rattling well. And that would live a non bad referral machinery if y'all didn’t experience you're inwards practise as well as y'all variety of felt like: this is exterior my immediate realm of expertise. But y'all tin ever focus on the person. You know this is a component division of the person. I think all of us tin do, all of us tin do that. So, I want to encourage us to non live like: “Oh, there's a perinatal loss. I take away hold to refer them out” because this is a component division of a person’s history as well as life as well as if nosotros normalize, that helps the social norms change. But augmenting how we're working with the customer inwards whatever our practise is with some of these organizations who take away hold chapters, back upwardly groups, y'all know, some other – there’s a nationwide network of back upwardly groups within this foundation, “Mothers inwards Sympathy as well as Support” as well as our colleague Joanne Cacciatore (who’s at ASU, Arizona State University) has been their executive manager as well as founder. They take away hold national chapters, international chapters genuinely and, y'all know, thence I think there's a lot of back upwardly resources to augment what nosotros do that are rattling perinatal loss specific.
Jonathan Singer: It sounds similar a lot of it is back upwardly groups. It's mutual aide: “I'm with people who take away hold been where I've been--”
Sarah Kye Price: Yes.
Jonathan Singer: --who are where I am” to a greater extent than thence than individual, complicated grief therapy or something similar that. Is that right? Is that what I'm getting?
[00:38:52]
Sarah Kye Price: It is. I think the acre is struggling with this a picayune scrap as well as y'all catch it inwards the latest DSM revisions, that’s a topic for a different podcast but, y'all know, but–
Jonathan Singer: (Laughter) No, let's pass an hr as well as a one-half going into it correct now. I'm sure equally people are driving to their classes or operate they're going to totally–
Sarah Kye Price: (Laughter) Yeah, exactly.
Jonathan Singer: – they're going to live glad to utter nigh it.
Sarah Kye Price: But I think the cardinal combat inwards some of the, y'all know: Is it grief? Is it depression? Is it mental health? Is it bereavement? that’s going on with the DSM debate. What the nub of that is about, is that nosotros recognize that grief is uniquely human as well as volition belike demeanor on almost all of us inwards this lifetime. Whereas nosotros also recognize that at that topographic point are situations as well as events as well as complexities of the private as well as the social as well as layers as well as layers of difficulty that hateful that at that topographic point are individuals who are grieving who also demand as well as deserve to a greater extent than intensive treatment: an intervention. Because that’s what they demand at the time, coming together them where they're at is providing a to a greater extent than intensive grade of counseling, therapy as well as back upwardly as well as there's zip [00:40:00] incorrect with that. And that doesn’t hateful that at that topographic point are people, nosotros can't seat the stigma on that, around some people deal amend than others. It's non that.
It's the layers of complexity that hap that are unique to the individual, his or her household unit of measurement situation, social dynamics, y'all know, long-term history pieces as well as thence there's zip similar a grief lawsuit to opened upwardly all that stuff up, right. So for those of us who are inwards clinical practise I think, y'all know, your before inquiry equally y'all asked nigh when nosotros notice out nigh this loss later, that’s a picayune scrap to a greater extent than typical. What brings y'all inwards the door is the tip of the iceberg.
Jonathan Singer: Right.
Sarah Kye Price: What nosotros operate on through getting a goodness history, through edifice a trusting relationship, through bespeak the correct appropriately confrontational questions that brand people, y'all know, opened upwardly up as well as experience comfortable opening up. And I don’t hateful confrontation inwards a negative way, but inwards a way that says y'all know: “This is a rubber infinite as well as I tin inquire y'all a inquiry that mightiness brand y'all take away hold to utter nigh an uncomfortable province of affairs inwards your life because nosotros recognize that inwards that at that topographic point tin live healing.” So, I think that has been to a greater extent than my experience as well as y'all know I think at the nub of that at that topographic point are some unresolved grief issues for a lot of people.
The other thing that I'll say, as well as I only want to seat this out at that topographic point for social workers, is that nosotros all take away hold rattling long reproductive histories as well as sometimes our reproductive histories are longer than the partner that we're with. And thence 1 of the challenges that happens is if nosotros take away hold someone who approaches us as well as they approach us inwards a “couple situation,” at that topographic point may live pieces that are bigger than the immediacy of their relationship. And thence that, y'all acquire some sensitive topics around at that topographic point as well as I think y'all take away hold to follow the private nuances of that. But for many people, y'all know, our reproductive lifespan tin live longer than the human relationship we're inwards at that instant as well as nosotros take away hold to give that some acceptance inwards a non-judgmental way as well as live willing to take away hold those conversations as well as appreciate when nosotros may take away hold 1 conversation when ii people are together as well as some other conversation the side past times side solar daytime when 1 of them calls us on the telephone as well as wants to give us some to a greater extent than information or an FYI or a door knob therapy for the side past times side session.
Jonathan Singer: I think that’s thence interesting because it genuinely speaks to y'all know, the complexity of the human experience as well as genuinely agreement things over time. I know that when I talked with Barbara Jones nigh pediatric oncology, 1 of the things that she mentioned was y'all know: pediatric oncology today is equally much nigh kids who take away hold survived that are all of a precipitous inwards childbearing years who can't take away hold kids because of their cancer handling when they were 5, for example. You know, as well as to that same bespeak if somebody experienced perinatal loss at eighteen or twenty as well as then, y'all know, at xxx is with somebody new, experiences it 1 time again as well as has, y'all know, has multiple levels of grief but this other somebody didn’t know because maybe they didn’t realize their partner was sexually active, y'all know, who knows what's going on. It's thence complicated.
Sarah Kye Price: Life’s complicated, right, right.
Jonathan Singer: Exactly. Yeah. It genuinely speaks to how sensitive nosotros take away hold to live as well as how curious.
Sarah Kye Price: Yeah.
Jonathan Singer: Appropriately curious, nosotros demand to live around this number of pregnancy, reproductive history.
Sarah Kye Price: And I think this gets dorsum to, Jonathan, why nosotros may avoid it a picayune scrap equally social workers. And thence because if nosotros know that something could live genuinely messy, y'all know, we're human beings also as well as thence sometimes nosotros have, or sometimes nosotros experience the constraint of, y'all know, nosotros take away hold a specific destination that nosotros take away hold to attain with someone or nosotros take away hold a time-limited--
Jonathan Singer: --we take away hold some other customer coming in.
Sarah Kye Price: (Laughter) Yes, exactly, y'all know the realities of practice.
Jonathan Singer: Right.
Sarah Kye Price: So I think, y'all know, y'all take away hold to frame it inwards the context of beingness opened upwardly to the discussion, but y'all can't, y'all know, drag it out of somebody if you're non going to take away hold fourth dimension to genuinely operate with it either. So y'all take away hold to live sensitive to beingness the somebody who tin live opened upwardly to having that conversation as well as I think some of that way a picayune scrap of upfront operate inwards our ain selves to think nigh like: What are my values as well as am I bringing anything into my operate or customer human relationship that would halt somebody from disclosing to me nigh their pregnancy or their loss history. You know, do I laid upwardly some, whatever variety of signals as well as do I take away hold some stuff that I'm non comfortable talking about.
And y'all know nosotros all engage inwards that as well as the way that nosotros do some self-reflective practice. I've had a number of people who take away hold come upwardly to me as well as said: “You know I only don’t know what to say” personally or professionally. “I don’t know what to say if someone [00:45:00] I don’t know what to say if someone’s nurture dies, I don’t know what to say if someone, y'all know, was pregnant as well as I found out they had a pregnancy loss as well as thence I only didn’t say anything.” Yeah, well, yeah, that’s non genuinely helpful either as well as thence I ever say--
Jonathan Singer: So what, yeah, thence what do y'all say?
Sarah Kye Price: So, the best thing that y'all tin say is: “My friend, how are you? I'm sorry. I'm sorry you’ve gone through a hard time. Do y'all want to talk?” It's non to laid upwardly it. We don’t take away hold to take away hold a magic bullet to laid upwardly it. We don’t take away hold to attempt to notice a placating term. We take away hold to non run away. We take away hold to non attempt to laid upwardly it with our words as well as thence the gift that nosotros give is to live present, to say a heartfelt “I'm sorry,” to give someone a hug as well as say “I'm hither for y'all no thing what.”
Jonathan Singer: And this is specifically if you're inwards a sort of a social--
Sarah Kye Price: Right, and--
Jonathan Singer: --setting similar your friend or something similar that. Now, if you're working with a client, tin nosotros usage the instance of a nurture brings a kid inwards for services? Right? You utter with the nurture about: “So how was your pregnancy with picayune Johnny?” You know, whatever. At that point, should y'all ask: “Have at that topographic point been other pregnancies”? Like how do y'all take away hold this conversation inwards an assessment setting? [00:46:29]
Sarah Kye Price: Mm-hmm. Oh I think it depends on the practise setting, because y'all know a province of affairs where maybe I'm concerned to a greater extent than ofttimes than non nigh the other kid that’s at that topographic point because my usage is to a greater extent than as well as – y'all know, who do I position equally my customer is genuinely the inquiry there.
Jonathan Singer: Right.
Sarah Kye Price: If that kid that the nurture brought inwards is my client, I take away hold to live genuinely sensitive. Because y'all know, seat myself inwards that shoes, if I convey my immature lady into the pediatrician’s usage as well as I acquire asked questions, I'm alone going to expose thence much. I would just, it's only human nature right, because she’s my daughter’s Dr. non mine. So the same thing for us.
You know really, if the kid or some other kid was our identified person, I’m belike non going to force the customer that much except to say to, y'all know, the mom or dad or moms or dads or whoever is at that topographic point with them, y'all know: “Can y'all tell me nigh whatever other – are at that topographic point whatever other children, whatever other pregnancies that you’ve experienced?” I tin inquire it inwards a rattling innocuous way that lets them say something if they want to say something.
Now if the adults are my clients, y'all know, that’s a picayune scrap of a different story because I mightiness demand to operate with them inwards a to a greater extent than total capacity. Any other province of affairs I want to know, anything nigh the family’s history that mightiness influence my customer with the child, now, I want to know nigh the grownups inwards this situation: “So, y'all know, thence utter to me, utter to me nigh the pregnancy that you've had or the kid that was born, other pregnancies as well as what your hopes as well as expectations are for the future.”
So, I seat it inwards a context. I similar to inquire the inquiry inwards a full general way that lets people regard their past times or introduce as well as their future: “Talk to me about, y'all know, what your y'all know, what y'all had wanted, what has happened as well as what y'all promise for the future.” Because that puts it out at that topographic point as well as I think inwards the reply to that inquiry ever are the things that allow me to probe a picayune scrap farther as well as brand people comfortable talking nigh whatever may take away hold happened. Or maybe it's that, y'all know, maybe at that topographic point hasn’t been a particular loss number inwards the past, but maybe at that topographic point are some worries nigh the time to come or at that topographic point are difficulties with this pregnancy to know the number has been positive as well as thence it gives us an chance to live preventative inwards that sense.
Jonathan Singer: You know as well as I only thought nigh this but fifty-fifty if y'all know, somebody had grown upwardly inwards a household where at that topographic point had been a pregnancy loss as well as that that affected their growing up. I mean, I'm genuinely thinking nigh the classic McGoldrick household unit of measurement therapy video where inwards the household unit of measurement that is portrayed at that topographic point was a babe that died as well as the dad inwards this household unit of measurement was named after that baby.
Sarah Kye Price: Yes. I know that rattling video. I usage that with my students.
Jonathan Singer: [Laughter] Yes.
Sarah Kye Price: And they ever acquire to the “Oh,” but y'all know this genuinely as well as peculiarly at nowadays we're talking nigh generational things equally well, right. So, we're a picayune scrap to a greater extent than comfortable at nowadays talking nigh pregnancy inwards full general equally good equally losses, but a generation ago, very, rattling different as well as that wouldn’t take away hold been an odd province of affairs especially inwards many cultural contexts. So at that topographic point are legacies around these loss experiences that happen.
I remember, y'all know, I take away hold a personal anecdote: my mother in law at my father-in-law’s funeral. And there's a large family, big, big, large household unit of measurement as well as they all, y'all know, acquire along fairly well. But [00:50:00] my mother in law sat downwardly side past times side to me as well as began to tell nigh the 1 babe that she had that died, as well as y'all know [laughing], as well as they were all laughing because everyone knows what I do for a living as well as they're like: “It was written on you!” It was non anything that their household unit of measurement talked about, but she only felt compelled to tell me the story as well as fifty-fifty thence she was telling me how that changed her inwards the way she parented her side past times side kid as well as I thought how rattling interesting.
I hateful that was sort of an interesting instant of disclosure as well as a personal situation, but I think allowing as well as facilitating that conversation without a label. And thence some of the classic literature talks nigh things similar “the replacement child” as well as I genuinely attempt to avoid that because it really, it minimizes. It's also uni-dimensional, the experience. But of course, it's going to demeanor on the way nosotros parent. Any experience affects the way nosotros parent. People parented differently after September 11, 2001 than they did before as well as it's not, y'all know, nosotros demand to non arrive some large psychodynamic painful thing, but to realize that our expectations change, influences, how we're going to nurture that side past times side kid or fifty-fifty think nigh if at that topographic point volition live a side past times side child.
I've had whatever number of clients who take away hold had multiple fetal deaths who take away hold said to me: “I'm only non putting myself through this again. I'm not. We made a decision. We’re non going this road whatever further.” And inwards practise I've had to say: “I completely abide by your decision, but what I want to do hither is utter nigh what that volition hateful for you. So that y'all tin seat some goodness parameters around the places that y'all mightiness experience goodness nigh that determination or the ways that that determination mightiness live challenging inwards the future” as well as thence nosotros tin assist them develop their coping around it. H5N1 lot of it is only beingness plan-ful as well as communicative as well as non harboring variety of the unresolved issues that may emerge.
Jonathan Singer: Well, Sarah this has been amazing. Thank y'all for the stories as well as for talking nigh perinatal loss inwards multiple different areas that social workers would demand to know about. For listeners who want to know more, are at that topographic point other resources that y'all would recommend that folks should cheque out if they want to acquire to a greater extent than nigh perinatal loss?
[00:52:29]
Sarah Kye Price: Absolutely. I would say – I'm going to seat a plug inwards for the arrangement that I've been the president of as well as at nowadays I’m the past times president of, which is the “Pregnancy Loss as well as Infant Death Alliance” as well as we're an international fellow member organization, thence we're non direct grief back upwardly providers, but what nosotros do is nosotros back upwardly the operate of those who back upwardly grieving families as well as thence we're a fellow member organization. You tin notice us on the web. We post a lot of populace instruction materials.
Also if y'all go a member, if people would select to do that, there's a lot to a greater extent than opportunities for educational spider web conferences as well as webcasts, for people who are to a greater extent than interested inwards beingness a component division of that. But fifty-fifty for the full general professional person public, nosotros offering guidelines for practice, for infirmary personnel equally good equally for people inwards the community. We offering an extensive reading listing of articles as well as books as well as links to other websites as well as information, thence y'all know I'm going to give y'all a number of different websites to appear at for other organizations equally well, too.
I think there's a lot of information that’s there, y'all know, the footing broad spider web is a large house as well as thence there's some sites I would recommend to a greater extent than than others. And I think 1 of the things that is non bad for us to know equally social workers is that at that topographic point are people who experience their grief inwards many different ways as well as nosotros tin acquire from all of these experiences. I would encourage everyone to live opened upwardly to the possibility of talking with their clients, to leave of absence the door open, fifty-fifty if you're non inwards a setting where y'all tin inquire a inquiry or y'all tin go into the depth of an intense history, brand sure that when you're working with clients who are inwards their reproductive years or take away hold been through their reproductive years, which is a whole lot of clients, that y'all continue that door opened upwardly as well as allow them to utter nigh their experiences of nativity equally good equally of loss.
Jonathan Singer: Well, I promise that folks experience to a greater extent than comfortable keeping that door opened upwardly after listening to this conversation, thence give thank y'all you thence much.
Sarah Kye Price: Thank you.
[End of Audio]
[0:54:33]
Transcription generously donated past times Kelsi Macklin.
References
- Price, S.K., & McLeod, D.A. (2012).Definitional distinctions inwards response to perinatal loss as well as fertility barriers. Illness, Crisis, & Loss, 20(3), 255-273.
- Price, S.K. & Handrick, S.L. (2009). H5N1 culturally relevant as well as responsive approach to screening for perinatal depression. Research on Social Work Practice, 19, 705-714. doi: 10.1177/1049731508329401
- Price, S.K. & Proctor, E.K. (2009). H5N1 rural perspective on perinatal depression: Prevalence, correlates, as well as implications for community service enhancement. Journal of Rural Health, 25(2), 158-166.
- Price, S.K. (2008). Women as well as reproductive loss: Client-worker dialogues designed to intermission the silence. Social Work, 53(4), 367-376.
- Price, S.K. (2008). Stepping dorsum to gain perspective: Pregnancy loss history, depression, as well as parenting capacity inwards the Early Childhood Longitudinal Study, Birth Cohort (ECLS-B). Death Studies, 32(2), 97-122.
- Price, S.K. (2007). Social work, siblings, as well as SIDS: Conceptual as well as case-based guidance for household unit of measurement scheme intervention. Journal of Social Work inwards End-of-life & Palliative Care, 3(3), 81-101.
- Price, S.K. (2006). Prevalence as well as correlates of pregnancy loss history inwards a national sample of children as well as families. Maternal as well as Child Health Journal 10, 489-500.
- Price, S.K. (2002). An alternative persuasion on mothers asset stillborn babies. Medscape Women's Health 7(4), 10.
- Doka, K. (2002). Disenfranchised grief: New directions, challenges, as well as strategies for practice. Champaign, IL: Research Press.
- Layne, L.L. (2003). Motherhood lost: H5N1 feminist occupation concern human relationship of pregnancy loss inwards America. New York: Routledge
- Seftel, L. (2006). Grief unseen: Healing pregnancy loss through the arts. London: Jessica Kingsley Publishers
Resources
Pregnancy Loss as well as Infant Death Alliance (PLIDA): www.PLIDA.org- PLIDA is an international fellow member arrangement of perinatal bereavement providers including nurses, social workers, chaplains, physicians, populace wellness providers as well as wellness advocates who operate straight with families experiencing perinatal as well as infant death. PLIDA’s mission is to back upwardly the operate of those whose operate supports grieving families through promoting provider education, community awareness, as well as networking back upwardly providers with each other.
- The MISS Foundation is active inwards both back upwardly as well as advocacy for families experiencing the decease of a kid at whatever time, including deaths occurring during pregnancy or childbirth. The founder as well as Executive Director of the MISS Foundation, Joanne Cacciatore, is also a social operate faculty fellow member at Arizona State University as well as has dedicated her career to back upwardly as well as advocacy, including leading the national MISSing Angels neb initiatve.
- SHARE is a infirmary as well as community based back upwardly programme with chapters throughout the United States. SHARE’s operate creates meaningful connections betwixt the wellness scheme as well as ongoing community-based peer support. They also offering an extensive, moderated online back upwardly grouping for families affected past times perinatal loss.
- Bereavement services has worked to create a comprehensive preparation curriculum emphasizing relationship-based aid of families impacted past times perinatal loss as well as infant death. They offering nation-wide preparation for those who wishing to supply bereavement back upwardly and/or grouping facilitation at both basic as well as advanced levels equally good equally train-the-trainer as well as professional person certification inwards bereavement support.
- Named after the Greek goddess of wellness as well as wellness, the Hygeia Foundation offers a broad make of back upwardly related to reproductive wellness as well as loss issues from ectopic as well as tooth pregnancy, to complex diseases impacting neonatal health. In improver to bereavement support, the foundation plant with low-income families to supply burial assistance.
- This collection of fine art produced past times over xxx individuals impacted past times perinatal loss travels inwards national exhibitions, telling the stories of life impacted past times a pregnancy loss or infant death. The website features many of the plant of fine art inwards the collection; the present tin go to communities around the country. Instructions for submitting fine art to the Secret Club Project are also available on the website.
APA (6th ed) citation for this podcast:
Singer, J. B. (Host). (2013, Apr 18). Perinatal loss: Interview with Sarah Kye Price, Ph.D. [Episode 79]. Social Work Podcast. Podcast retrieved Month Day, Year, from /search?q=perinatal-loss-interview-with-sarah-kye
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